The Mail on Sunday (London, England), August 20th, 2006
Byline: NIKI SHISLER It's only 11.30 but my doorbell has just rung for the sixth time this morning. It's not that I'm super-popular or anything; the vast majority of visitors to my home aren't even coming to see me. No, it's my youngest child, Felix, seven, who is the subject of all this attention. I try to think back to what privacy was like and realise that I can't remember. Felix is disabled; he has a condition called nemaline myopathy (NM), a rare muscle disorder that makes him profoundly weak. Though his mind is razor-sharp, his body is hopelessly inefficient. He uses a power wheelcha...
HighBeam Research, Free Preview: 'this life.'... Full Membership required for unlimited access. Free 7-day trial.
Subscribers: HighBeam content is only available to HighBeam subscribers. Click the link above for more information.
