Mail on Sunday, August 20th, 2006
It's only 11.30 but my doorbell has just rung for the sixth time this morning. It's not that I'm super-popular or anything; the vast majority of visitors to my home aren't even coming to see me. No, it's my youngest child, Felix, seven, who is the subject of all this attention. I try to think back to what privacy was like and realise that I can't remember. Felix is disabled; he has a condition called nemaline myopathy (NM), a rare muscle disorder that makes him profoundly weak. Though his mind is razor-sharp, his body is hopelessly inefficient. He uses a power wheelchair to get around, a ve...
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